By Mayo Clinic Staff
You may be referred to a doctor who specializes in the diagnosis and treatment of muscular dystrophy.
What you can do
•Write down the signs and symptoms you or your child has been experiencing, and for how long.
•Bring photos or video recordings that illustrate your concerns.
•Write down key medical information, including other conditions.
•Make a list of all medications, vitamins and supplements taken by you or your child.
•Note whether anyone in your family has been diagnosed with muscular dystrophy.
Questions to ask your doctor or your child’s doctor
•What’s the most likely cause of these signs and symptoms?
•What tests are needed?
•What are the possible complications of this condition?
•What treatments do you recommend?
•What is the long-term outlook?
•Do you recommend that our family meet with a genetic counselor?
Don’t hesitate to ask other questions during your appointment.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may make time to go over points you want to spend more time on. You may be asked:
•What symptoms have you noticed?
•When did they start? Are they getting worse?
•Has anyone in your immediate family had muscular dystrophy?
•Do you plan on having more children?