Families share positive feedback on new alert cards

Published date 07/08/2015 Author: Lloyd Tingley People living with muscle-wasting conditions are telling us that our new alert and symptoms cards are making a real difference to their lives. Since December 2014 we have launched alert cards that include vital emergency information for people living with Duchenne muscular dystrophy, Charcot-Marie-Tooth disease, Spinal Muscular Atrophy and
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Updated: families take the fight for Duchenne treatments to Health Minister

Author Peter Sutton Published 07/09/2015 Manoj and Sejal Thakrar and Gary and Louisa Hill headed to the Department of Health on 8 September for a meeting with the Health Minister, George Freeman MP, as part of the campaign for access to emerging treatments for Duchenne. Shiv Thakrar (aged 4, pictured) and Archie Hill (aged 9)
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Becker muscular dystrophy

The muscular dystrophies are a group of genetic disorders, which cause muscle weakness.  Becker muscular dystrophy was first recognised in 1956 and is now known to be a much milder variant of the Duchenne type of muscular dystrophy. The condition causes weakness and wastage of the muscles. Becker muscular dystrophy is generally slowly progressive and
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Secure Support in School – Muscular Dystrophy

We recently helped Oliver Mason, a young boy with Duchenne Muscular Dystrophy, secure a place at a school well placed to support his complex needs. Oliver Mason Oliver is 16 and his school was struggling to meet his increasing complex needs. In the few months before his mother, Lorna, got in touch with us, Oliver’s
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MDA SHOW OF STRENGTH TELETHON

Star Lineup Set for MDA Show of Strength Telethon this Labor Day Weekend!  Aloe Blacc, Alyssa Milano, Brad Paisley, Bret Michaels, Fall Out Boy, Jason Derulo, Josh Groban, LeAnn Rimes and Rascal Flatts among those set to appear on the Muscular Dystrophy Association’s telethon  The show, focused on saving and improving the lives of people fighting
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Drop Foot: Causes, Treatments, and More

Foot drop is a common symptom of MS and other disease. Find out about its causes and treatment options. Foot drop, or drop foot, is a common symptom of multiple sclerosis (MS). It’s a difficulty in lifting the front part of the foot, which can make walking challenging. People with this symptom tend to walk
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Progress Now Summer 2014

Research and Clinical Trial Updates   by Quest Staff on July 7, 2014 – 9:03am Quest Summer 2014 What About My Disease? Readers sometimes wonder what’s happening with research for their diseases when they don’t see news about them for a while in the pages of Quest. But keep in mind: Research that seems to be
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