Secure Support in School – Muscular Dystrophy

We recently helped Oliver Mason, a young boy with Duchenne Muscular Dystrophy, secure a place at a school well placed to support his complex needs. Oliver Mason Oliver is 16 and his school was struggling to meet his increasing complex needs. In the few months before his mother, Lorna, got in touch with us, Oliver’s
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Drop Foot: Causes, Treatments, and More

Foot drop is a common symptom of MS and other disease. Find out about its causes and treatment options. Foot drop, or drop foot, is a common symptom of multiple sclerosis (MS). It’s a difficulty in lifting the front part of the foot, which can make walking challenging. People with this symptom tend to walk
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MMD1: Antisense Drug Moves to Human Testing

Isis Pharmaceuticals is launching a phase 1 trial of ISIS-DMPKRx, an experimental drug for type 1 myotonic muscular dystrophy Article Highlights: ISIS-DMPKRx is an experimental drug for type 1 myotonic muscular dystrophy (MMD1 or DM1) based on antisense technology, a strategy to block disease-causing genetic instructions. MDA has funded multiple studies to understand the underlying
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‘Give us a break’, say young adults in Scotland

Tuesday 24 June 2014 A newly launched Muscular Dystrophy Campaign report highlights the fears of young disabled Scots that an alarming lack of hospice and respite facilities will leave them either isolated at home or reliant on facilities aimed at much older people. The Give us a Break report, which launches today at a meeting
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